Wednesday, March 15, 2017

Home again

B and the Beast got home yesterday. Things are interesting and it's taking a lot of patience to figure out how everything needs to change to accommodate his cast, but they're home. So all is well.

I feel weird posting all this here. Maybe it's time to give up blogging completely..

Sunday, March 12, 2017

New day, new diagnosis

B has talked to the specialist doctor guy who is supposedly the best in his field in the Southeastern United States. Probably not the uber rare bone disease/disorder/condition/thing.

They're doing a biopsy right now. Or maybe they're done by now. I don't know. If nothing weird shows up, they'll do whatever surgical thing they can and move on from there.

Worried about the idea of a spica cast. Not sure how to manage.. all the things. Getting him home, bodily functions, keeping him from losing his mind with not being able to move. But we'll do what we can as we can.

Today's goals include: buying the promised ender dragon toy for when we see him again and procuring actual real food for those of us still at home. I'm finding all manner of simple things very difficult to do but I suppose that's to be expected.

Positive thoughts for my Beast are greatly appreciated.

A Terrible Day

The Beast has broken his leg and is, as I type, on his way to a specialist in another city. He may (or may not) have a rare bone disease. disorder. condition. something.

My poor, youngest baby, is doped up on morphine and in an ambulance speeding away from me (with B. he isn't alone. I would never leave him alone). I've never spent a single night away from him. Until now.

I'm not going to get into my feelings about the lack of anything actually happening during the 10ish hours they spent at the local hospital. X-rays and an MRI. And a lot of waiting.

Needless to say, I am not alright.

I've had three panic attacks today. Nearly hyperventilated twice. I feel terrible and I'm still not 100% sure about what is going on with my youngest. I can only hope that tomorrow (Sunday. technically today. it's after midnight) there is good news. I'd like his surgeon to be brilliant and talented. I'd like the Beast to have the best case scenario of all of this. And then I want him home with me again.

*deep breath*
By order of B I need to take my sleep medication (melatonin) and attempt to rest now.